Mandatory Advanced New-born Screening Saves Lives - Essay

1307 words - 6 pages

English 15s Rhetoric and Composition

It's a warm summer day, and you and your child are outside playing in the yard. Suddenly
your child stumbles and falls, up to this point in your life, your child has made every childhood
milestone like walking, talking, potty training, etc. But suddenly he starts to become a little
clumsy. Fast forward three months later and you are told your child will die in approximately
three years of a rare brain disease. This was the case for my family. If advanced new-born
screening at birth would have been done at birth, we would have stopped this disease dead in its

My brother Tyson passed away from a rare brain disease called metachromatic
leukodystrophy two years ago. He started off as a very healthy young boy. We noticed that he
was losing the ability to walk and run. Not to the extent that he couldn't, but to where he would
stumble and fall out of nowhere. This went on for about two months until we decided to take him
to a neurologist. Immediately the doctor knew his MRI scan was not good news. From that day
on my life, as well as my family's life, was changed forever. Two years went by quickly, after all
the trips and fundraisers. It was still my family and this disease. Now that boy who was
stumbling is now completely immobile. Soon after he lost all ability to eat and talk. About a year
later we were saying our goodbyes and spending every breath with my dear brother.

I like to consider myself an expert on this topic but what better people to ask other than
my mother and father? My parents have had so much firsthand experience with this disease as well
as newborn screening. In the coming year, my father will be speaking in front of the U.S. Senate
on this very issue. I decided to ask my parents a few questions relating to this topic as well as my
brother's specific disease in relation to other fatal diseases. The first question I asked him was
simple. Why should the federal government fund advanced newborn screening? His answer was
simple, he said there is no price tag on a person's life (Balek). In my opinion, this is the perfect
answer to the question of no if and or buts about it. I asked a follow-up question about where this
money should come from. He said it should come from our Congressmen/women's salaries. He
said they are far overpaid for the little they do. His main takeaway from this was they can raise
millions for a congressional dinner but not for something that will one day save thousands of
lives (Balek). Money should not be an issue when it comes to medical necessities. During the
interview, I decided to change my course of questioning and ask about Tyson's disease
specifically. I specifically asked them how the disease has affected their marriage. They said that
it tested us as well as brought us together (Balek). They said there were times when they
thought they were going to get a divorce, but Tyson brought them together. I asked them how it

More like Mandatory Advanced New-born Screening Saves Lives - Essay

Ferdinand Rudolph Von Grofé Was Born In March 27, 1892, In New York. - Music - Essay

978 words - 4 pages ... Cung Lian October 29, 2018 Music Appreciation Ferdinand Rudolph Von Grofé was born in March 27, 1892, in New York. He was the only son in the family. He was an American composer, arranger, pianist and instrumentalist. During the 1920s and 1930s, he went by the name Ferdie Grofé. His parents are all known in their musician careers. His father, Emil von Grofé, was a baritone who sang mainly light opera. His mother, Elsa Johanna Bierlich von Grofé ...

Kite Runner Essay- The Role Religion Plays - School - Research

928 words - 4 pages ... Moayedi Sierra Moayedi January 11, 2019 Advanced English Kite Runner Essay The Role Religion Plays The Kite Runner which is a controversial narrative novel written by Khaled Hosseini- an author of the Afghan-American heritage; is a story which revolves around the life of Amir and has set throughout events. For Example, the fall of the monarchy in Afghanistan and the military intervention of the Soviet Union. This narrative clearly expressed ...

Assignment On Young Drivers

570 words - 3 pages Free ... young drivers course before they reach their 'New Driver' status. The bottom line is that the course is not made mandatory in B.C., and it needs to be. Take Alberta for example, we may criticize them for having such a low minimum driving age. At least a young driver's course is made mandatory for all students before they obtain the right to drive on their own. So how do we ensure that all teens are educated in B.C before they take their road ...

Gun Control Argumentative Essay - Arrapahoe Community College - Argumentative

941 words - 4 pages ... debate and you were very direct about it. Overall it’s a fine essay and if I was a libby I’d probably be convinced that gun control is actually a joke. Probably just focus on the article a little more for the summary. Works Cited Buyalos, Andrew. “Statistics Show Concealed Carry Saves Many Lives, Takes Few.” Collegiate Times, 19 Jan. 2017, ...

Analysis Over Hills Like White Elephants - English 1301/1302 - Essay

1972 words - 8 pages ... at the time got pregnant, I remember she had to fight tooth and nail with that boy to keep the baby and him in her life. Though he didn’t want to keep the baby at first something changed in him, when his daughter was born you could hear in the way he talked about her that he loved her more than anything else. The baby changed his outlook on life for the better and showed him that partying doesn’t come close to the beauty of new life and what it ...

Paper On Human Papilloma Virus

472 words - 2 pages ... . Exciting new techonology and research findings have advanced the room to conduct better HPV and cervical cancer screening, diagnosis, and treatment. (ASHA 2006).Many are probably wondering how you can get HPV. There are really only two words that can describe it, and that is DIRECT CONTACT. By direct contact I mean skin-to-skin, not by bodily fluid exchange. The infection is almost always sexually transmitted, but the incubation period is variable ...

Fetal Health And Implications From The Mother - Bio 203 - Science Information

1072 words - 5 pages ... Activity 2.1.5 Maternal and Child Health Introduction Due to her advanced age, Judy Smith is concerned about the health of her baby, but she believes that some things should be left to chance. The couple is elated to be pregnant again and they are excited to meet the new addition to the family. In order to monitor the growth of the fetus and check for any chromosomal abnormalities, they have agreed to routine ultrasounds as well as amniocentesis ...

Case Study

967 words - 4 pages ... a clinic for a mandatory drug screening. Carl claims to be prepared and ready to go for orientation on June 15.Key Issues:Shortly after Memorial Day, Carl went over all of the new trainees' files and discovered that most of them were incomplete, missing transcripts and other paperwork. Carl also realized that the trainees' have not been sent or scheduled for their mandatory drug screens. When Carl checked the orientation manuals, he found that ...

Research On Down Syndrome

1032 words - 5 pages ... ' neck. The affected may also have an intellectual disability. However, the degree to which it affects the individual varies from person to person. Many people born with Down syndrome may also be born with heart, intestine, ear, and breathing problems. How is Down syndrome diagnosed? Down syndrome can often be detected during pregnancy by doing tests such as prenatal screening tests and prenatal diagnostics tests. Prenatal screening tests ...

Schindler's List Character Essay - USC - Essay

1269 words - 6 pages ... camps and treatment of Jews. Acting both to preserve the history of the holocaust and to inform new generations of the past, the film has importance and meaning. However, Spielberg brings an element of hope to a deeply tragic film by way of heroic characters such as Oskar Schindler and Itzhak Stern. Though these characters the audience is given a glimmer of hope. In this essay I will be examining the statement; for a text to be appealing it ...

Thomas Alva Edison: Inventor Of The Century - History - Research Paper

1685 words - 7 pages ... transportation, communication, shopping, living, and much more. They have proven to be the focal point of many states because they not only provide jobs and money, but they can help America prosper and become more advanced. These inventions have provided jobs and opportunities for those who have been struggling to support themselves and their families. Factories employ hundreds of workers every year as they continue to grow, expanding our economy ...

Historical Animator Research Essay - University Of Fraser Valley, Media Arts 100 - Essay

866 words - 4 pages ... task given to them. Marc Davis is one of those excellent animators. He was born in 1913 in California. His parents traveled a lot, and in the process of the constant movements, he ended up attending 22 schools by the time he finished high school. Davis began drawing as a way of expressing himself in coping with the difficulties of moving around and finding friends. Marc Davis is historically significant for his excellent skills in the natural ...

Affortable Care Act Mental Coverage - St Charles Community College - Research Paper

5081 words - 21 pages ... employer market—inside and outside HIEs. While many states have developed their own, more inclusive parity laws over the years, these rule changes represent the first time that federal law has mandated mental health and substance use treatment coverage. In addition to mandatory coverage of mental health services, the ACA also fills in other gaps in the earlier parity law. The new rules clarify, for instance, that parity must be applied at all ...

Literary Analysis On Social Issues In Children's Literature

1738 words - 7 pages ... of her religion. Jewish people who were killed during the Holocaust were stereotyped based on their religion. Despite doing nothing wrong, their religion identified them as a problem. In The Paper Bag Princess, Robert Munsch reverses the prince and princess roles defying gender stereotypes where the prince normally rescues princesses. This feminist perspective empowers girls to be the hero in their own story. This essay will present how ...

Literary Archetypes Of Dances With Wolves And Harry Potter - English - Essay

1133 words - 5 pages Free ... Archetypes Archetypes are a pattern of human experience that happens throughout all human cultures. Archetypes are happening everywhere, such as in movies, in novels, and in our lives, but we are not aware of their existence. Archetypes exist in literature to make stories more compelling to readers. Learning archetypes helps us respond better to the archetypal patterns in our lives. By understanding archetypes, we will have a better ...